(This isn’t a sweet post, but it’s truthful) me. Angry. Screaming in my pillow, hitting the mattress, crying, breaking down in the car, vegetating on the couch all day. Isn’t it enough? We are home 36 hrs and have learned duties that only nurses should be doing on our child […]
Friday is Day 21 of our 2nd stay in the hospital. Some things that have happened in that time… The Super Bowl Des had two stomach perforations (both successfully repaired). Valentine’s Day Single-digit temps and snow A 60-degree day We read Curious George about 500 times Luke, Solomon, and I […]
Okay. A lot to catch up on. Last Thursday Des went in for a fluoroscopy to check the status of his stomach. It was a live X-ray with some contrast fluid to see how stomach contents flowed around. Unfortunately they found another perforation. Surgery fixed that up Friday morning. That […]
It’s been an eventful few days. Des hasn’t been feeling well and on Saturday he felt warm. We checked his temp (with a thermometer that seems to take two weeks to get a reading) and it was at the level that we needed to call the doctors. And the doctor […]
I’ve heard before that the treatment for cancer is as brutal as the illness. The past week is making that more real. The battle this past week has been abdominal cramping. The attacks come on suddenly and at any time of day or night. And they’re severe. There’s no sugar-coating […]
If it’s not one thing, it’s another. We got a handle on meds, now it’s poop that is giving us fits. Des gets an incredible pain from being backed up, and even though two doses of miralax and another medication that is supposed to push it out goes in him […]
Good evening. I figured I’d join in the blogging fun for a turn. So today was a big day. It marked halfway through the first phase of treatment. It was Des’s first outpatient experience,. And first day of using a power wheels car as a mode of transportation for 3 […]
Today marks the halfway point of Des’s “induction phase” of treatment. We’ll be 14 days into the 28-day period. I have no idea what the upcoming phases will look like (the doctors are wise to let us know what we need to know for now). But this phase is medicine-heavy. […]
Today Des was discharged and our family is together under the same roof again. The doctors are “very pleased” with his progress. His blast count is still zero. His platelets and hemoglobin are holding steady. Since coming home this afternoon he’s already moving around more and definitely more comfortable. It’s […]
The hard part about getting good news is that I don’t want it to determine my mood. I don’t want to need good news to have good days. Really I think this is just my heart building up a wall for the bad news days. I want to be able […]