Okay. A lot to catch up on. Last Thursday Des went in for a fluoroscopy to check the status of his stomach. It was a live X-ray with some contrast fluid to see how stomach contents flowed around. Unfortunately they found another perforation. Surgery fixed that up Friday morning. That […]
It’s been an eventful few days. Des hasn’t been feeling well and on Saturday he felt warm. We checked his temp (with a thermometer that seems to take two weeks to get a reading) and it was at the level that we needed to call the doctors. And the doctor […]
I’ve heard before that the treatment for cancer is as brutal as the illness. The past week is making that more real. The battle this past week has been abdominal cramping. The attacks come on suddenly and at any time of day or night. And they’re severe. There’s no sugar-coating […]
Today marks the halfway point of Des’s “induction phase” of treatment. We’ll be 14 days into the 28-day period. I have no idea what the upcoming phases will look like (the doctors are wise to let us know what we need to know for now). But this phase is medicine-heavy. […]
Today Des was discharged and our family is together under the same roof again. The doctors are “very pleased” with his progress. His blast count is still zero. His platelets and hemoglobin are holding steady. Since coming home this afternoon he’s already moving around more and definitely more comfortable. It’s […]
The hard part about getting good news is that I don’t want it to determine my mood. I don’t want to need good news to have good days. Really I think this is just my heart building up a wall for the bad news days. I want to be able […]
Today marks the 7th day of treatment for Desmond’s B-cell Acute Lymphoblastic Leukemia. We’ve been through two chemotherapy treatments, dozens of oral medications (steroids taste terrible, by the way), two MRIs, two echo-cardiograms, an EEG, and ECG, and a partridge in a pear tree. We’ve seen enough doctors in the […]